Fragile X Syndrome is a genetic disorder. FXS is the most common inherited form of intellectual impairment & the number one known genetic cause of autism. I'm here to raise awareneXs and blog our story. For starters, it is my distinguished honor and privilege to introduce you to Hayden.
Clouds, May 2010
Tuesday, November 15, 2011
and in other news today:
The logo has launched!
Same phenomenal organization; fantastic new logo:
visit www.fragilex.org to see more!
I also wanted to share an encouraging note from one of H's teachers. This was in the communication journal today. She wrote,
"Oh my G-d what a great day. He sat at my table without his Rifton chair for 20 minutes."
She's supposed to be sending me a pic.
Pretty fantastic to say the least.