Fragile X Syndrome is a genetic disorder. FXS is the most common inherited form of intellectual impairment & the number one known genetic cause of autism. I'm here to raise awareneXs and blog our story. For starters, it is my distinguished honor and privilege to introduce you to Hayden.
Clouds, May 2010
Thursday, May 2, 2013
every behavior has a purpose.
we can blame waking up on the wrong side of the bed for a difficult
morning disposition, then my child may have woken up on the wrong side
of the universe today.
As parents we must exhibit extra
patience or we'll exacerbate the situation, particularly when you have a
child with special needs. The experts also tell us to pay attention to
antecedents (if I had a mere penny for every time I heard that), &
we're told that every behavior has a purpose.
In that case, I
will say in my most calm, soft voice... antecedents can be completely
invisible, apparently I'm supposed to be independently wealthy, & my
child clearly has a whole lot of f#@%*^g purpose in life.