Fragile X Syndrome is a genetic disorder. FXS is the most common inherited form of intellectual impairment & the number one known genetic cause of autism. I'm here to raise awareneXs and blog our story. For starters, it is my distinguished honor and privilege to introduce you to Hayden.
Clouds, May 2010
Monday, May 20, 2013
This might be the shortest blog post in the history of my blogging.
The one FX clinical trial which was closer than all the others to actually reaching FDA approval, was prematurely stopped due to lack of funding.
100,000 signatures are needed to get the President's attention.
Please help the families trying to save the STX209/Arbaclofen extension by signing and sharing the online petition.