Fragile X Syndrome is a genetic disorder that we never even heard of until our son was born. FXS is the most common inherited form of intellectual impairment & the number one known single gene cause of autism. I'm here to raise awareneXs and blog our story.
Clouds, May 2010
Tuesday, February 21, 2017
new chapter
No doubt members of the fragile x community will look at the title of this post & think it means one thing, when actually I'm updating about another. Just a bizarre coincidence that we are experiencing so many changes in our lives at the moment.
For right now I just wanted to share that I am glad I was able to attend at least part of the meet & greet with the incoming LPS Principal this evening. I have only met him briefly, twice, but I think he seems like a good match for the middle school.
I also stayed for the beginning of the BOE meeting that followed, & next up the well-deserved recipients of the Governor's Educator of the Year Awards were acknowledged. One of the recipients from the elementary school is someone that we've known since H's first year in this school district. Both recipients from the middle school are familiar to Hayden as well, & one of them actually worked directly with him for the first part of the year.
Another tribute that all were looking forward to immediately followed, to honor our recently retired Principal. For anyone who couldn't be there, the Board President's speech was genuinely felt by our former Principal & I believe the room as a whole. His family was there to see him recognized & he was honored with several standing ovations. On a personal note, it's my understanding in the short amount of time that my son knew the principal, they developed quite a bond. I remember when I saw him at the PTA Craft Fair back in the fall, he told me he hardly expected to develop such a relationship with any student this late in his career. The sentiment was better than my recap is, but he essentially said that getting to know my son added much value to his day. He said that Hayden's smile could fill a room with joy & that the love inside of him is an inspiration to others.
I am confident other parents of children with special needs would concur, that the mutual positive impact is just incredible when your child is truly understood. Despite the Principal's retirement being somewhat sooner than expected, I wish him happiness & the best of health as he plans ahead. My wish for the incoming Principal is a mutually comfortable relationship with the district moving forward.
There are countless kids & so many faculty members who will always have a special place in our hearts, & I know Hayden has a special place in theirs. They all deserve nothing less than the best.
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good content
ReplyDeletemila