Clouds, May 2010

Clouds, May 2010

Thursday, May 30, 2013


5k can mean a lot of things.



Door Number.

5 kilos of gold? (That would be a heck of a lot more than $5k.)

I feel funny asking people for money. First of all, many of our friends, family, & loved ones already donate so generously throughout the year. Each time we receive a contribution notice to either the NFXF or FRAXA, in Hayden's honor of course, it is indescribably heart warming.

Not to mention all the people who write letters in support of the annual Advocacy Day every March, or those who sign petitions to save a clinical trial (& btw, if we don't reach 10,000 signatures by June 20th I believe the page automatically expires, so if you haven't shared the link yet...), or especially those few who encourage others to support the FX community, even if they never personally met Hayden. For example, my mother's colleagues who are hosting an upcoming retirement dinner specifically in her honor & have encouraged donations in lieu of gifts.

(Many of them will finally meet our family's celebrity for the first time, at said dinner.) 

So, what do I mean by 5k?

Well, The National Fragile X Foundation is hosting a virtual event for FX Awareness month in July. I am taking part in the "Let 'Em Know 5k" & you can support our team...

All funds will be matched up to $25,000.00

So please consider helping the Virtual Walk/Run participants reach that $25k goal & turn it into $50k...

Just click here. (same link as "our team" above)

It would be near impossible for me to put into words how much your continued support means to us.

And to this kid right here:

(click on the picture & it will open in a larger view)

Thank you. Thank you. Thank you.


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