Clouds, May 2010

Clouds, May 2010

Monday, September 12, 2016

candle snuffer

Changes are a big deal in our little fragile x world, especially sudden ones. I’m well aware of the fact that sometimes changes are unavoidable, but there are reasons why I practically advocate until my lips are blue to maintain consistency for Hayden. I think it sucks & I wish I didn’t have to because it’s mentally exhausting sometimes... constantly putting out all of these little fires. But Hayden has more than his fair share of curve balls & I will always help build successful environments for him.

Today is his 5th day of 5th grade & already there are countless adjustments for him across the board. And today started out with even more unexpected changes. (Don’t worry, I always calmly communicate to the appropriate people & I do not need anyone to do that for me.) 

But it sure would be helpful if there was a more universal understanding of the real impact that changes can have on our kids, not just mine… & how inconsistencies & transitions can heighten any child’s anxiety to the point that they do. I have to believe in my heart that maybe things would be different but until I have better evidence of such understanding, for me, this is why I do what I do.

There will always be concerned parents, impossible budgets, & specific laws that need to be adhered to— & sometimes when you mix all three together, it’s a recipe for complete frustration. But 
for lack of a better way of putting this… I also hope people in the community who are willing to speak up remember to leave their pitchforks at home. Just because many of us have overlapping concerns does not guarantee we’ll see results faster. I do not envy the often difficult position that the school administrators are in & my goal remains to help, not challenge. Hayden's needs should only be an opportunity for others to step up. 

That being said I pray that positive, helpful decisions are on the horizon. Middle school is a very difficult adjustment for us & sometimes Hayden just needs a little bit of help letting the world see what a bright candle he really is.


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