Fragile X Syndrome is a genetic disorder that we never even heard of until our son was born. FXS is the most common inherited form of intellectual impairment & the number one known single gene cause of autism. I'm here to raise awareneXs and blog our story.
Clouds, May 2010
Tuesday, November 15, 2011
and in other news today:
The logo has launched!
Same phenomenal organization; fantastic new logo:
visit www.fragilex.org to see more!
I also wanted to share an encouraging note from one of H's teachers. This was in the communication journal today. She wrote,
"Oh my G-d what a great day. He sat at my table without his Rifton chair for 20 minutes."
She's supposed to be sending me a pic.
Pretty fantastic to say the least.